CANCELLED - Kickball for Prader Willi Syndrome | What’s happening in Buffalo

CANCELLED - Kickball for Prader Willi Syndrome


*The event has already taken place on this date: Sun, 06/28/2020
Kickball Game Day, All Ages, All Levels Sunday, July 19 at the Silver Creek Central School, Silver Creek, NY 14136 to benefit Prader Willi Syndrome research

Please help us keep this calendar up to date! If this activity is sold out, canceled, or otherwise needs alteration, email mindy@kidsoutandabout.com so we can update it immediately. If you have a question about the activity itself, please contact the organization administrator listed below.

Kickball for a Cause

 

Sunday, July 19 – Silver Creek, NY 14136

Kickball  -    to Benefit  -the foundation for Prader Willi Research (FPWR) https://www.fpwr.org/

501 c (3) (ID# 31-1763110)

 

 

 

Prader Willi Syndrome (PWS) is a rare disorder - it causes Low Muscle Tone, Developmental Delays, &  - Most Striking - People with PWS are never able to feel full  -they are ALWAYS HUNGRY. 

 

Because PWS is a rare disease and mostly unknown to the general public, Fundraising is accomplished almost exclusively by parents of kids with PWS.

We are a small, yet dedicated and stubborn, group of advocates. We need help raising money for research and spreading awareness


*Times, dates, and prices of any activity posted to our calendars are subject to change. Please be sure to click through directly to the organization’s website to verify.

Location:

Silver Creek Central School
1 dickinson St
Silver Creek, NY, 14136
United States

Phone:

4049181608
Contact name: 
Michael Matesevac
Email address: 
The event has already taken place on this date: 
06/28/2020
Time: 
9:00-1:00