CANCELLED - Kickball for Prader Willi Syndrome
*The event has already taken place on this date: Sun, 06/28/2020
Please help us keep this calendar up to date! If this activity is sold out, canceled, or otherwise needs alteration, email mindy@kidsoutandabout.com so we can update it immediately. If you have a question about the activity itself, please contact the organization administrator listed below.
Kickball for a Cause
Sunday, July 19 – Silver Creek, NY 14136
Kickball - to Benefit -the foundation for Prader Willi Research (FPWR) https://www.fpwr.org/
501 c (3) (ID# 31-1763110)
Prader Willi Syndrome (PWS) is a rare disorder - it causes Low Muscle Tone, Developmental Delays, & - Most Striking - People with PWS are never able to feel full -they are ALWAYS HUNGRY.
Because PWS is a rare disease and mostly unknown to the general public, Fundraising is accomplished almost exclusively by parents of kids with PWS.
We are a small, yet dedicated and stubborn, group of advocates. We need help raising money for research and spreading awareness
*Times, dates, and prices of any activity posted to our calendars are subject to change. Please be sure to click through directly to the organization’s website to verify.